Education for People with Primary Progressive Aphasia

Minnesota Connect Aphasia Now is a local nonprofit organization dedicated to improving the life participation of individuals impacted by aphasia through comprehensive programs, education, peer connection and community support.

What is Primary Progressive Aphasia?

Primary Progressive Aphasia (PPA) is language disorder that gradually impairs a person’s ability to speak or comprehend language over time. The onset of PPA is subtle, with symptoms arising slowly over a period of at least two years.  PPA occurs because the brain regions that control language become diseased and degenerate, resulting in communication difficulties that may mimic broader dementia.

PPA is a type of frontotemporal dementia (FTD) that is caused  by degeneration of the frontal and/or temporal lobes of the brain. Researchers are working hard to find out why this happens and how it damages brain cells.

People with PPA are fighting against a condition in which they will continue to lose their ability to speak, read, write, and/or understand what they hear. However, individuals with PPA benefit during the course of their illness by acquiring new communication strategies from speech-language pathologists.

Additional information:

  • PPA is a medical condition caused by deterioration of brain tissue important for speech and language.
  • PPA is different than Alzheimer’s for a few reasons:
    • PPA starts with language loss, generally occurs at a younger age and is less common.
  • PPA changes over time and language abilities continue to decline.
  • There are three variants or types of PPA:
    • Semantic PPA
    • Agrammatic PPA
    • Logopenic PPA
  • PPA is a language disorder that gradually impairs a person’s ability to speak or comprehend language over time. This results in communication difficulties that may mimic broader dementia.
  • Combined with social withdrawal and loss of independence that individuals with PPA endure, it is critical that they find ways of staying connected and engaged in meaningful activity. (Mahendra & Arkin, 2004). The same is true for care partners and other family members and friends.
  • Individuals with PPA and their families/friends can benefit from acquiring new communication strategies from speech language pathologists. Families can also learn new communication strategies and resources through group programs.

Page updated July 2024