Information for Care Partners
At MnCAN, we prefer the term care partner rather than the more traditionally used term caregiver.
A care partner is a friend, family, neighbor or other community members that partners with the person with aphasia to help the person actively participate in their life!
MnCAN Care Partner Support Group
While general stroke support groups can be very helpful for care partners, the specific challenge of aphasia often necessitates a different approach. The MnCAN Care Partner support group will provide opportunities for education about aphasia, as well as emotional support and peer sharing.
This group is open to anyone who cares for someone with aphasia. Your person with aphasia does not have to participate in a MnCAN group.
We look forward to meeting you, hearing your stories, and sharing tips for self-care and education about aphasia. Come and gain the support of others going through the same journey.
Group meeting details:
- The group meets the 2nd Thursday of each month from 6:30-7:30pm
- The group meets on Zoom
- A typical meeting includes: introductions, topic sharing and time for comments/questions. Topics include both speech-language aphasia related and self-care/emotional support related issues.
- To join, email us at contact@mncan.org
Care Partner Resources
National Organizations
- Aphasia Access. Communication is key to person-centered health care and meaningful life. Aphasia Access empowers healthcare professionals, interdisciplinary teams, speech-language pathologists, and community advocates. Visit their webpage for more information: www.aphasiaaccess.org
- Caring.com is a senior care resource for family caregivers seeking information and support as they care for aging parents, spouses, and other loved ones. Care partner support guide: www.caring.com/caregivers/burnout/
- Caregiver Action Network. www.caregiveraction.org
- Family Caregiver Alliance. 800.445.8106 https://www.caregiver.org/
- Health In Aging. Health In Aging is a trusted source for up-to-date information and advice on health and aging, created by the American Geriatrics Society’s Health in Aging Foundation. https://www.healthinaging.org/about-us.
- Caregiver Self Assessment Questionnaire: https://www.healthinaging.org/tools-and-tips/caregiver-self-assessment-questionnaire
- National Alliance for Caregiving. 301.718.8444. https://www.caregiving.org/
- Rescue: Resources and Education for Stroke Caregiver’s Understanding and Empowerment. Visit the website for more information: www.cidrr8.research.va.gov/rescue/
- Stroke survivor dedicated to helping people with disabilities live full lives!” Lots of tips, with a sense of humor; articles, books, and helpful products. Visit the website for more information: www.strokesurvivor.com
- Voice of Hope for Aphasia. Aphasia Simulations. Experience what it might be like to have aphasia! The Aphasia Simulations developed by former Voices of Hope for Aphasia Executive Director, Dr. Jackie Hinckley, and Keen Research, are intended to provide a different perspective on the issues encountered by a person with a language disorder. With this perspective comes, perhaps, greater understanding and empathy. Visit their webpage for more information: https://www.vohaphasia.org/simulation/
- Well Spouse Association. 732.577.8899. Visit the website for more information: https://wellspouse.org/
Minnesota-based organizations offering assistance and respite care
- Care Patrol has several advisors in the Twin Cities available to help with care needs. Visit their website for more information: https://carepatrol.com/about-carepatrol/
- Eldercare Partners – 651.234.2262 https://www.caregiver.org/eldercare-partners
- DARTS (Healthy Aging Solutions) – 651.455.1560 (Dakota County) https://dartsconnects.org/caregiving/
- Family Means – 651.439.4840 (Washington County) https://www.familymeans.org/help-for-caregivers.html
- Family Caregiver Connection – 763.422.6960 (Anoka County) https://www.anokacounty.us/655/Family-Caregiver-Connection
- Living at Home Network – 651.649.0315 https://lahnetwork.org/
- Metropolitan Caregiver Services Collaborative. http://ltcombudsman.org/uploads/files/support/MN-Caregiver-Service-Collaborative-List-final.pdf
- Minnesota Board on Aging – 651.431.2500 http://www.mnaging.org/Advisor/Caregiver.aspx
- Minnesota Live Well at Home helps older Minnesotans thrive by providing the programs and resources that keep people living in
their how homes longer. Visit their website for more information: Live Well - Open Circle Adult Day Services is ideal for adults of all ages who could benefit from daytime social interaction, health and personal care and/or cognitive support. Several locations in the Twin Cities area. Visit their website for more information: https://www.opencircle.org/
- Senior Community Services – 952.541.1019 https://seniorcommunity.org/caregiversupportgroups/
- Senior Helpers is owned by a Speech Pathologist. Senior Helpers provides non-medical home care to adults who would benefit from 1:1 support for companion care services (companionship, outings, laundry, light housekeeping, transportation, errands, meal prep) and/or personal care services (bathing, grooming, toileting) individualized to needs. Services can be provided for as little as 4 hours once a week, up to 24/7, to foster improved quality of life and increased independence. Contact: 952-395-3443. Visit the website for more information:www.seniorhelpers.com/mn/lake-minnetonka/
- Wilder Caregiver Support Services – 651.280.2273 (East Metro) https://www.wilder.org/what-we-offer/healthy-aging-caregiving-services/caregiver-services
Books and Podcasts
Books about aphasia:
- Stronger After Stroke by Peter Levine
- Stroke Diary: The Secret of Aphasia Recovery by Thomas Broussard, Jr, Ph.D.
- Hope After Stroke for Caregivers and Survivor by Tsgoyna Tanzman, MA, CCC-SLP
- The ABC’s of Aphasia: A Stroke Primer by Thomas Broussard, Jr, Ph.D.
- Identity Theft: Rediscovering Uurselves After Stroke by Debra E. Meyerson, PhD
- Aphasia Handbook: a guide for stroke and brain injury survivors and their families by Joan Peters, and Martha Taylor Sarno
Podcasts about aphasia:
- “Slow Road to Better” podcast produced by the Stroke Comeback Center. Search your favorite podcast app to listen.
- Aphasia Access Conversations podcast: https://www.aphasiaaccess.org/podcasts/
- Lingraphica: 5 Podcasts For Anyone Living With Aphasia: https://lingraphica.com/2021/10/25/living-with-aphasia-podcasts/
- Noggins & Neurons Podcast
Talking to children about aphasia:
- National Aphasia Association (NAA) has a great resource for talking to children about aphasia.
- Talking to Kids About Aphasia: https://aphasia.org/stories/talking-kids-aphasia/
- Explaining Aphasia to Children: https://aphasia.org/stories/explaining-aphasia-to-children/
- Children’s book explaining aphasia: https://www.amazon.com/Grandmas-Stories-Understanding-Tess-Zaorski-ebook/dp/B0947KBKFD
Page Updated February 2025